Haemophilia activities list pdf

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August undefined, 2024

WebMar 7, 2016 · Paediatric Haemophilia Activities List (PedHAL) The PedHAL should be selected to measure the impact of hemophilia on self-perceived functional abilities in children. The current version (0.11) consists of 53 items in seven domains: • Sitting/kneeling/standing (10 items) • Functions of the legs (11 items) • Functions of the … WebThe current version (0.11) consists of 53 items in seven domains: Sitting/kneeling/standing (10 items) Functions of the legs (11 items) Functions of the arms (6 items) Use of …

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WebThe WFH Humanitarian Aid Program works with national member organizations (NMOs) and hemophilia treatment centres (HTCs) around the world to support people with bleeding … Web• The Haemophilia Activities List (HAL)15,44 is a disease-specific measurement instrument. It is the best-studied measure of self-reported activities for adults45 and has been translated into many languages. The three subscores (upper extremity, basic lower extremity, and complex lower extremity) have been proven useful in the United osteoporosis screen uspstf

Table of Activity Ratings - National Hemophilia Foundation

WebDescription. The Functional Independence Score in Hemophilia (FISH) was developed as a performance-based assessment tool to objectively measure an individual’s functional ability. It is intended to measure what the person with disability actually does, not what he ought to be able to do, or might be able to do if circumstances were different ... WebOct 8, 2024 · Recently, the Haemophilia Activities List (HAL), a haemophilia-specific self-assessment questionnaire to assess a patient's self-perceived functional ability, was introduced and a limited pilot ... osteoporosis severity

Pediatric Haemophilia Activities List (PedHAL) - eLearning …

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WebHaemophilia Activities List Introduction This is the Hemophilia Activities List, or HAL. In this questionnaire several activities are listed that could be difficult for people with … WebIntroduction: The Haemophilia Activities List (HAL) was developed to measure activities and participation in persons with haemophilia (PWH). Shortening the questionnaire may … osteoporosis severe icd 10WebIntroduction: The Haemophilia Activities List (HAL) was developed to measure activities and participation in persons with haemophilia (PWH). Shortening the questionnaire may facilitate use of the HAL. Aim: The aim of this study was to determine which items of the HAL are redundant, to construct a shorter version of the HAL, and to determine the … osteoporosis self-assessment tool for asians

"WebFunctional consequences of haemophilia in adults: the development of the Haemophilia Activities List. Haemophilia. 2004 Sep;10(5):565-71 (PubMed abstract) Van Genderen FR, Westers P, Heijnen L, De KP, van den Berg HM, Helders PJ, et al. Measuring patients' perceptions on their functional abilities: validation of the Haemophilia Activities List. " - Haemophilia activities list pdf

Haemophilia activities list pdf

WebCertified translations for the PedHAL are available in the following languages: Dutch, Flemish, French (Canadian and European), English (UK and USA/Canadian), Danish, Norwegian, Spanish, Portugese, Czech, Bulgarian, Chinese, Japanese, Arabic, Turkish, Swedish, Polish, Korean, Serbian, South African, and Italian. The PedHAL is available … WebWorld Federation of Hemophilia (WFH) volunteers are committed and passionate. They wholeheartedly believe in our vision of Treatment for All, and they give their precious time day in and day out to help the …

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WebFeb 17, 2024 · The pre‐ and post‐intervention assessment consisted of Functional Independence Score, haemophilia joint health score (HJHS), Pediatric Haemophilia Activities List (PedHAL), surface electromyography (SEMG) of thigh muscles to assess muscle electric activity, and load cell on extensor and flexor thigh muscles to evaluate … WebThe HAL measures the impact of hemophilia on self-perceived functional abilities in adults. It contains 42 multiple choice questions in seven domains: Lying/sitting/kneeling/standing …

WebJan 31, 2024 · Hemophilia A poses a significant lifetime burden on the affected patients not only in terms of quality of life and social consequences but also due to increased utilization of healthcare resources. 1 Recurrent bleeding into joints is one of the most severe consequences of hemophilia as it reduces movement and causes both chronic pain and ... WebFeb 16, 2024 · Protocol in PDF; DCW in Word; DD in RTF; DD in CSV; REDCap Instrument ZIP; Download; Protocol; Administration; Details; Source; Variables; ... Summary of the Haemophilia Activities List (HAL) The Haemophilia Activities List (HAL) is a self-administered questionnaire that includes 42 multiple-choice items across seven domains: …

WebNov 4, 2024 · The Report on the World Federation of Hemophilia (WFH) Annual Global Survey (AGS) 2024 is now available online. The report includes global demographic and treatment-related data on people with hemophilia (PWH), von Willebrand disease (VWD), other rare factor deficiencies, and inherited platelet disorders. In 2024, a total of 120 … WebNov 27, 2024 · 3.1.5 Pediatric Haemophilia Activity List (PedHAL) The PedHAL is a haemophilia specific measure assessing self-perceived limitations in activities in children between 8-18 years old. 41 It contains 53 items across 7 domains and can be completed by both parents and children. A summary score as well as component scores involving …

WebOct 7, 2024 · Signs and symptoms of spontaneous bleeding include: Unexplained and excessive bleeding from cuts or injuries, or after surgery or dental work. Many large or deep bruises. Unusual bleeding after vaccinations. Pain, swelling or tightness in your joints. Blood in your urine or stool. Nosebleeds without a known cause.

WebFunctional consequences of haemophilia in adults: the development of the Haemophilia Activities List. Haemophilia. 2004 Sep;10(5):565-71 ( PubMed abstract ) Van Genderen FR, Westers P, Heijnen L, De KP, van den Berg HM, Helders PJ, et al. Measuring patients' perceptions on their functional abilities: validation of the Haemophilia Activities List. osteoporosis society of the philippinesWeb20 stepsforliving.hemophilia.org Table of Activity Ratings Low Risk Low to Moderate Risk Moderate Risk Moderate to High Risk High Risk Activity Category Page Aquatics 1 22 … osteoporosis shoulder icd 10WebHaemophilia Activities List Introduction This is the Hemophilia Activities List, or HAL. In this questionnaire several activities are listed that could be difficult for people with … osteoporosis signs and symptoms treatmentWebMar 25, 2024 · Health history, the Functional Independence Scale of Hemophilia (FISH), Hemophilia Activities List (HAL), and Short-Form McGill Pain Questionnaire (SF-MPQ) … osteoporosis severity scaleWebDec 13, 2024 · The Haemophilia Activities List (HAL) is recommended to measure self‐reported activities and participation. 5 The HAL has been developed with patient interviews according to the World Health Organization (WHO) International Classification of Functioning, Disability and Health (ICF) and it measures self‐reported limitations in … osteoporosis signs and symptomsWebSep 8, 2024 · Introduction The Haemophilia Activities List (HAL) was developed to measure activities and participation in persons with haemophilia (PWH). Shortening the … osteoporosis shorthandWebThe Haemophilia Activities List (HAL) and PedHAL are disease-specific, self reported measures of activities for adults and children, respectively. FISH The Functional Independence Score in Hemophilia (FISH) is the best studied observed performance measure for people with hemophilia, used in many countries and age groups. osteoporosis slideshow